Daniel James Miller, the one-year-old son of UFC middleweight fighter Dan Miller and his wife Kristin, was born with autosomal recessive polycystic kidney disease, or PKD. A foundation has been formed in his name to raise money for medical bills in the neighborhood of $100,000.
His kidneys are large, approximately 3-4 times as large as they should be, and as the name implies, full of cysts. At birth, Danny’s kidneys functioned at a level that allowed his body to clear itself of toxins and fluid, but he required medications to maintain his blood pressure and electrolyte balance. Unfortunately, when he was 2 ½ months old, he became very ill and as a result of that illness, lost all kidney function. He was hospitalized at Children’s Hospital in Philadelphia, Pa., where he was started on hemodialysis initially, and then later, peritoneal dialysis. Daniel was hospitalized for a total of about 2 months, the majority of that time, sedated, with multiple intravenous lines, and under constant 1:1 nursing care. His parents, Dan and Kristin learned to care for him, including the mechanics and the principles of peritoneal dialysis. Also, due to the oversized kidneys, Danny required tube feedings and special feeding considerations.
Finally, in May 2010, Danny was discharged home and thrived under the constant and loving care of his parents. He is a bright, sweet and affectionate little boy, who loves being read to, enjoys being outdoors, and is crazy about his “puppies”. He amazes us every day with his capacity to learn and to love.
Danny’s journey is far from over. Although the dialysis that he receives every day clears the toxins and excess fluid from his body, the many other functions of a normal kidney are not replaced by the dialysis, so Danny’s growth has been slow and certain hormone levels are difficult to regulate. Kidney transplantation, specifically a living donor kidney transplant, has been planned, but before that can take place, Danny must have both of his kidneys removed to make room for the transplanted kidney. Once transplantation occurs, Danny will continue frequent follow up visits to the hospital to be monitored and he will require anti- rejection medications for the rest of his life.
AMA Fight Club welcomes you to attend a Super Seminar to support Daniel in his treatments for autosomal recessive polycystic kidney disease.
Saturday, December 3, 2011
AMA Fight Club
831 Route 10 East Whippany, NJ
Facebook fanpage with constant updates on the seminar and Paypal links HERE
If you want to donate straight to the Paypal account, the email address attached to it is DJMillerFoundation@gmail.com
Meeting lil' sis for the first time
meet lil Danny, with his Cookie Monster
Danny loves the pups
The Miller family
Daniel James Miller
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